I’ve had a couple of you wonderful people, ask me how things are going since I’ve been somewhat absent from blogging. So I thought I’d give an update.
H came home from her stay in the hospital on June 24th. Her seizures were under control by meds and the lesions on her brain were received 5 doses or whole brain radiation (WBR). By the time she was released, her head was as clear as it had ever been and her spirits soaring high. After having spent 2 1/2 weeks laying in a hospital bed, her legs needed some work. At home, she used a cane at first and a walker to get around.
It was so nice to finally have her home, and she decided it was time to come back and sleep in our bed. She had previously been using the guest room for nearly 7 months. She thought it was better that way, not to wake me if she needed to get up. Turns out, she was going through a depression which, under the cloud of all the stress, I totally missed….
Despite that, we were on a new path now. H was motivated, excited to move on. Even though her prognosis was weeks to months, it didn’t make her miss a step, so-to-speak.While she was in the hospital, we planned a birthday party upon her return home. Her 38th birthday was july 6. So on July 4th, we threw a party. We invited 20 of our closest friends and family. It was a beautiful party, and a beautiful day. Although H had some difficulty walking, she enjoyed every minute of that day.
In the days following the party, I spent time doing physio exercises with H, to try and get her legs back. At first, she was doing great, no hesitation, no trouble. As the days went on, she would say that her legs began to feel stiff and they were becoming more and more difficult to move.
On July 8th, she came to me and told me she could not pee. I took her straight to the ER. They gave her a catheter and sent her home. July 9th, they removed the catheter, but we went back early in the morning of the 10th to have it put back. Throughout these several visits to the ER, H was still using the walker, and managing to get in and out of the car. It was becoming more difficult though.
By July 10th, she not had any BM either.. (Sorry if this is too graphic..) so The nurse handed me an enema to give her and sent us home. No problem, I’ve got this!
That day, I gave her the enema, and just as I was helping her get to the commode, her legs gave out. This took me by surprise so i couldn’t hold her up. Luckily, I was able to set her on the floor gently and not drop her.
Somehow, while this was happening, H found the courage to laugh. She wasn’t upset or freaked out at all. I on the other hand, was a little more panicked. I called my neighbor, my wonderful neighbor and friend, who came over straight away. With her help I was able to pick H up off the floor and eventually get her to the commode and then the couch.
Unfortunately, I could not get her off the couch later that day to bring her to bed, so she slept on the couch.
By now, her legs and lower body functions were not working at all. The home care nurse, came by each day over the weekend, to make sure she was ok. On Monday, July 14th, H’s family doctor came to the house for a visit, within an hour, she was in an ambulance, on her way to the hospital. He wanted to get her scanned A.S.A.P.
Waiting in the “observation wing, was terrible, but my friend Stacy, H and I made the best of it. I wonder what the nurses thought, when they went into the room later to find a dozen blown up glove balloons taped to the wall with funny faces drawn on them. At 3:30am,H was given a bed in the oncology ward.
She was given a dose of radiation that night too. They said she would have to stay until at least Friday.
The next day, H had an MRI, I’ve never had one, but they look like an awful experience. The doctors had told us that, they thought there was a tumor compressing her spinal cord. What they found was a tumor growing from the inside of the spinal cord pushing outward. This is rare, it’s found in about about 3% of patients. This brought the possibility of H regaining the use of her legs, down quite a bit. But, they recommended she continue the radiation just in-case it did work.
Yesterday, july 17, was our wedding anniversary. we’ve been together for 17 years and married for 4. I took her outside in a wheelchair, we talked for a long time and just enjoyed the fresh air. We had dinner together in her hospital bed and we watched TV for awhile. Not the best situation, but at least we were together. The doctor bought us a drink from second cup, since we could not have alcohol lol. Last year on this day, we received the news that H had cancer.. So I suppose this year was a bit better than the last.
Monday is my birthday, and H is scheduled to have one more radiation that day and then maybe, she’ll come home. The doctors are concerned about sending her home, especially if her legs wont function at all. But I am ready, we are having a lift brought in, and I have learned how to change and dress her. we’ve also got a hospital bed ready and many other pieces of equipment. She wants to be home for however long she has left, and I will make it happen.
She is my true love, and in sickness and in health I will do everything I can to make her comfortable, safe and happy.
To be continued…